IBRF, Please Call.

As I said last week, we are anxiously awaiting a call from the International Brain Research Foundation (IBRF). What I didn’t tell everyone is the significance of it. There are two extremely important topics of this call, where one affects the other.

The first is the results of the tests Ryan had performed, including the qualitative EEG and Evoked Response Potential batteries. The second, based on the the results of the first, is whether Ryan will be accepted as a patient. Allow me to make this as fundamental as possible… do they feel Ryan has a shot of recovering at all.

So, we sit here like love-struck teenagers waiting for the phone to ring.

Before anyone says it, I am not a believer in the adage that “no news is good news”. You know what else is good news? Well, good news. Good news IS good news. Whereas no news is just that, no news. To me — and call me crazy — I’d define “no news” as “the absence of information”.

You must see by now, I am a simple man. I’m from that old school way of thinking that “no means no”. Good gracious, I’ve heard it enough to not be mistaken. Still, you can’t argue with my logic.

Unless, that is, you’re my wife…

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kdiviney@ryansrally.org
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17 Responses to IBRF, Please Call.

  1. Jo Hobbs says:

    There you go! Making us laugh! Are you related to my husband? You sound so much alike, and our sons 44 and 48 picked it up from him. Their wives, our granddaughters and I gang up on them sometimes, and then they don’t have a chance. Well, we are waiting here for good news, and writing is good while we wait.

  2. Rita says:

    We’re with you on this, praying for that phone call today. And there’s nothing wrong with trying to keep it simple. In fact, some of us out here still live by the KISS motto. Who likes complications? Hang onto each other with all you’ve got today, Ken and Sue. We will continue to pray for all the right doors to open for Ryan no matter what…

  3. Evelyn Boxley says:

    Prayers for a phone call coming your way and BIG prayers FOR “Good News” all day long!!!!!!!!!!!!!

  4. The GOOD news is that Ryan will always have you and his family no matter what the news is!!!

  5. Paula Yocom says:

    If the IBRF says no, (which I am praying they do not), I am hoping that the HBOT can continue, along with any other potentially beneficial (and new) treatments for Ryan. He is young, healthy, has had the very best in medical (and emotional) care, so even if the tests are “equivocal,” I really hope the IBRF would be willing to offer treatment for him. How does one prepare for an answer that is not in keeping with our hopes? As hard as I have been praying for Ryan to be offered this treatment, I also know Team Diviney will continue to love and care for him (and you, Sue & Kari) same as we always have. No matter what, we will still be here and continue walking this road with you. And Ken, as you can probably tell by now, we are addicted to this blog, and would go into terrible withdrawal if you ever stopped penning your thoughts for us to read! For real!!

  6. Cheryl Onderchain says:

    I hope you get the good news soon. xoxo

  7. Gail Doyle says:

    Dear Ken ,Praying for the news to be GOOD!!!!Ryan deserves it!!!! I know it must be very very hard ,but try to” keep the faith”SHSP……..

  8. Sam Durham says:

    You’re better than me. I’m annoying, I’d be calling about twice a day!

  9. Susanne says:

    Waiting…..wondering…..believing…..doubting…..believing…….trusting! All of these emotions put us on such rollercoaster where our mind races and our patience grows weary. We begin to imagine each insurmountable question that forms and controls our thoughts as we anticipate pending news. I’m right here struggling with you as you await the events to come. I’m hoping your news is promising and that Ryan’s world will be stretched beyond belief. I’m praying for all of you and will continue to patiently wait for the news with your family. May God bless you today as you have never been blessed!

  10. Mike says:

    Hang in there, they will call you soon.

  11. Pam GrahamGeorge says:

    I pray that good news comes, and I pray it comes soon! Love ya all. Still here. Still praying. You are such an inspiration. HUGS.

  12. sally ellis says:

    Waiting is the worst. I hope you have your good news soon. As always, thinking of you and hoping for the best.

  13. Debb Brooks says:

    It’s 8:00 Pm, any word back, just checking in!

  14. Jen Lovelace says:

    Am I the only one who it took this long to figure out how to respond to this?? Maybe I just did not scroll down far enough….we can hope. Ken your humor is in great shape, much to Sue’s chagrin I am sure. I also am a believer of no news is no news. I will give a “shout out” to God that he continue to answer our prayers. I have seen a few medical “miracles” this year and have never, ever thought Ryan would not recover. I want more than anything to see his beautiful face and for him to say “Jen, you kept me laughing with your posts”. What a beautiful friendship we have with no words yet spoken between the two of us. I adore him and pray for a big “yes” coming your way!

  15. Keith (In Morgantown) says:

    Don’t Speak as if its not so “Do they feel he has a shot of recovering”. With God All things are possible. Hes the Same Yesterday, Today and Forever! And I am holding onto that Ryan will be a Walking, Talking, Miracle. He did it back then and He will do it again. I know it has to be hard waiting and i cant imagine what you all are going through. But My Faith is holding that everything will be ok!

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