Category Archives: News

Odds and Ends

Ryan Continues to Become More Flexible I am by just how much Ryan’s flexibility is improving. Some days I notice this more than others. Yesterday was just such a day. I dedicated the day to ranging his fingers and toes. … Continue reading

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BWF Fundraiser Today!

BWF A HUGE reminder that today — all day — Buffalo Wing Factory is holding their fundraiser for Ryan. This will take place at all five northern Virginia locations. Proceeds from sales will go directly to Ryan’s Special Needs Trust … Continue reading

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Kari Home Safely. IBRF Call Held. BWF Event Tomorrow.

Kari In her typical manner, Kari exploded through the front door yesterday evening. It like feeling the bomb percussion waves just before being incinerated. What an aura! The dogs went into a frenzy. Duke was literally bouncing off the walls. … Continue reading

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Dr. Hinkle: “Eyes are Best I’ve Ever Seen Them”

Dr. Hinkle Earlier today, Dr. Hinkle (Ryan’s eye doctor) came to the house to check on Ryan’s eyes. He was here early last week and observed significant improvement in both eyes. He told me he was heading to a professional … Continue reading

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Buffalo Wing Factory Fundraiser: Saturday

This Saturday (April 23rd) the Buffalo Wing Factory, at all five Northern Virginia locations, will donate the proceeds from food sales to Ryan’s Special Needs Trust (SNT) Fund. This will be held the entire day. You can take a look … Continue reading

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Kari Coming Home! IBRF Call this Morning.

A Pleasant Surprise We knew Kari was coming home this weekend. I’m beside myself with anticipation. In fact, I was dreaming about it last night. But, the good news is she’ll be home a day earlier than expected… TODAY! Thank … Continue reading

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Bryan Tiplady to Coordinate Basement Project

Repost of Comment: All, I will coodinate and manage this effort for Ryan and the Diviney Family In the next few days, I will do an assessment to identify the necessary work and wish to begin identifying resources for this … Continue reading

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IBRF Conference Call Tomorrow

Preparing for IBRF Conference Call It’s crazy. So many balls in the air (and some are not even blue). It takes us hours just to prepare for a conference call with the doctors at IBRF. Both their time and ours … Continue reading

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Reminder: Tuesdays at Ruby Tuesday

For those who live in the Ashburn area, if you are thinking of eating out today and can’t decide where, Ruby Tuesday in Ashburn Village is donating 10% of the bill to Ryan’s care. Please remember to say you are … Continue reading

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Scary Good

Sue’s Delivery of News Needs Work Yesterday afternoon, I get a call from Sue… but am not able to answer. She immediately calls back and I can’t get to it. She calls a third time. Now I’m scared. She, obviously, … Continue reading

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